Social Networking Around Personal Health

Last year during a presentation, I mentioned the site PatientsLikeMe as an example of a platform that allows people to share health information with others and build a learning community.

I came across a paper that examined this type of social network that was interesting….Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data.

Using search and browsing tools, members can locate other patients in similar circumstances and with shared medical experiences. Members discuss the profiles and reports as well as general health concerns through the Forum, private messages, and comments they post on one another’s profiles. The Forum is a threaded dialogue available to every member of the community to pose questions, research findings, share coping strategies, and so forth. Private messages are emails sent from one user to another within the site; they are not read by other users or site administrators. Comments are remarks that one user posts on another’s profile, which are viewable by anyone in the community. Users can delete comments from their own profile. Each contribution made using any of these functions is labeled with a graphic representation (the nugget) giving a snapshot view of the contributor’s history and health status; the nugget is also linked to the user’s complete profile.

Looking at sites and papers like this one continually give me ideas of innovative ways to do environmental health community education.  Research is important, but if the communities are not discussing and applying research findings, then the investment is not as valuable. It is all about the communities.


Making Tag Clouds

I used Wordle to make this cloud from the words on this blog. Clouds can be used a number of different ways for educational outreach. It can build community if the words come from a group of people working together.

Using Skype for Recording Interviews

As a begin to launch two podcast series, I want to see what my options are for interviewing people. I’m learning more about Skype and found this very helpful slidecast.

Staying in a World of Possibilities

I am a graduate of Landmark Education – a transformational/leadership program. Reflecting on this education, I am reminded that my work is not about me, it is about those who I inspire. For all of us working in environmental health education, it is not how hard we work, but how much we inspire and motivate our audiences so they can transform their environments and improve their health.

Below is a video about Ben Zander, a conductor of an orchestra, who shares how all of us can work, no matter what field we are in.

Science 2.0 – Is Open Access Science the Future?

“Science happens not just because of people doing experiments, but because they’re discussing those experiments”

~Christopher Surridge, editor of the Web-based journal, Public Library of Science On-Line Edition (PLoS ONE)

Read the article: Science 2.0 – Is Open Access Science the Future?

Science & Research Education in Second Life

This video is a nice overview of science education in Second Life. Keep an open mind for what is possible and “get a second life!”.

This longer video gives a large overview of the variety of topics that can be taught and discovered in Second Life.

Credible Blogs for Scientific Research

I would love to get more researchers to blog. I know for some, especially Post Docs and graduate students, there is fear that their writing will be misinterepreted or by chance impact their career later down the road. The challenge is that everyone has a voice with blogs and some information may not be accurate.

A news blog for research called, strives to identify serious academic blog posts about peer-reviewed research with an aggregation site where others can look to find the best academic blogging on the Net.  See their article,
Where will science blogging go from here?

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